FAQ: DHHS Requires Hospitals to Grant Equal Visitation Rights to All Families

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This week, we’re explaining how you and your loved ones are affected by new federal regulations that would require nearly all hospitals to grant equal visitation rights to all types of families, not just those based on marriage or biology.

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In solidarity,

Kate Kendell
Executive Director

DHHS Requires Hospitals to Grant Equal Visitation Rights to All Families

On April 15, President Barack Obama issued a memo directing the Department of Health and Human Services to adopt new regulations that would require nearly all hospitals to grant equal visitation rights to all families, not just those based on marriage or biology. In the memo, President Obama specifically talked about same-sex couples as an example of family members who have been unfairly kept away from their partners when one is hospitalized. The President also said that he was taking this step in part because of what happened to Janice Langbehn and Lisa Pond, who were kept apart by a Florida hospital after Pond collapsed due to an aneurysm in February 2007. Pond died without her partner or their children being permitted to visit her.

What did President Obama’s April 15th Hospital Visitation Memo say and what does it mean?

On April 15, 2010, President Obama sent a memo to the federal Department of Health and Human Services (HHS). The memo told HHS to create new regulations about hospital visitation policies for all hospitals that get federal money.

The new regulations the President asked HHS to write would require hospitals to allow patients to decide who can visit them and who has the legal power to make medical decisions for a patient if the patient is unable to.

Did President Obama talk about LGBT people in the Hospital Visitation Memo?

Yes. The President’s memo said he wanted to protect LGBT patients and their families “who are often barred from the bedsides of the partners with whom they may have spent decades of their lives—unable to be there for the person they love, and unable to act as a legal surrogate if their partner is incapacitated.”

Why is this issue important to the LGBT community?

Anyone who is in the hospital deserves to be visited by friends and loved ones and to have a trusted person make decisions for them if they are too ill or unconscious.

But in most states, the law will automatically give the power to make your medical decisions to a biological or legal relative, such as a parent or a sibling. Even if you are married or in a civil union or domestic partnership, you may be hospitalized in a state that does not legally honor your relationship. Many hospitals will also prevent your friends and loved ones from visiting you except for legal relatives.
The law often does not recognize the relationships that LGBT patients have to their partner, spouse, friends, and loved ones. The proposed regulations would require hospitals receiving federal funds to let patients choose their own visitors and medical decision-makers. When these new regulations become law, they will provide significant protections to LGBT patients.

Are the new regulations in effect?

Not yet. Before any new regulations can go into effect, the government has to publish a draft and allow the public to comment.

As President Obama directed, HHS issued draft regulations on June 25th, 2010. The public had 60 days—until August 27, 2010—to comment on these regulations. Now, HHS will review the comments submitted, make changes based on the comments, and publish the final regulations by November.

The final regulations will likely go into effect on January 1, 2011.

What is NCLR doing to make sure LGBT people are protected by these regulations?

NCLR submitted comments asking HHS to expand the regulations to protect LGBT patients who are too ill or unconscious to choose their visitors or decision-makers. When a patient is unable to choose, we urged HHS to automatically give visitation rights to any person who plays a significant role in the life of a patient, including same-sex partners, families of choice, and close friends.

In addition, if a patient is incapacitated and does not have documents specifically naming a medical decision-maker, we urged HHS to require hospitals to give medical decision-making authority to the person who is most familiar with the wishes of the patient, regardless of whether their relationship would be recognized by the law.

Through our coalition work, NCLR also helped write a joint letter to HHS (pdf) from 53 national, state and local organizations.
What does all of this mean right now for the rights of LGBT patients and families?

Right now, the new regulations are not yet in effect. That means there is still a big risk that the rights of LGBT patients and families can be violated at hospitals throughout the country.

What can I do now to protect myself and my family?

There are two things you can do right now: 1) a hospital visitation authorization form, and 2) a health care directive or durable power of attorney for health care.

• Hospital visitation authorization: This form tells the hospital that you want a particular person to be able to visit you. If you end up in a hospital, you want to be sure that you can see the people you love—whether that is your partner, a close friend, or chosen family member.

• Health care directive or durable power of attorney for health care: This form lets you say who you want to make decisions for you if you can’t. Even if you are married or in a registered domestic partnership or civil union, your relationship may not be respected without this form. Also, with this form you can choose someone other than your spouse or partner to make medical decisions for you, if you wish.

For more information on other ways to protect your family, please take a look at NCLR’s publication Lifelines (pdf).

download this FAQ (pdf)

download our previous FAQ, “What the Ninth Circuit’s Latest Ruling in the Prop 8 Case Means” (pdf)

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